64-year-old Diana Nyad recently completed a swim from Cuba to Florida Labor Day weekend and the first message she sent to the world when she climbed out of the water: “Never Ever Give Up”.
While my first round of IVF is being canceled “Never Ever Give Up” is my mantra and always will be when it comes to motherhood. This very reason is why my doctor in Orlando will be getting fired tomorrow. I will be reclaiming the money I have put in to IVF and I will be going back to my RE in Los Angeles.
I am shocked and I am sad. I started with 12 antral follicles and after a great response to Follistim during my iui with my doctor in LA (5 mature follicles were triggered) I thought IVF would be no issue.
My protocol from my Florida RE:
– 3 weeks birth control pills
– 2 day break between bcp and stimulation
– Micro Lupron/ Follistim protocol
– Stimulation days 2- 5 10 units Micro-Lupron 225 units Follistim morning and evening
– Stimulation day 5 bloodwork reveals E2 level of 35…..30 freaking 5.
Florida RE calls says take 375 units of Follistim that evening and begin 300 units next morning
– Stimulations day 6- 8: 10 units Micro-Lupron 300 units Follistim morning and evening
Go in for more bloodwork and scan on day 8 – E2 is 97 and scan reveals nothing is happening in left ovary and I have two dominant follicles on right ovary and that is it.
AND THIS IS WHY MY FLORIDA RE WILL BE FIRED
I receive a call from the doctor who has been completely absent through the entire process to tell me things do not look good. So I say to him “ok, let’s go ahead and cancel this round and start again on a different protocol.” ( I know there are many protocols because I Google). He says to me “This is the gold standard and if you are a poor responder to this, then nothing will work.” Oh really???? So I play to his ego and kindly say: “while I understand that IUI and IVF are different I am having a hard time understanding why my LA doctor (because he’s much better) said my ovaries responded beautifully and I had a textbook IUI just five months ago. I stimmed for 10 days on 125 units of Follistim and he had to back me off on day 8 down to 75 units because I had 8 follicles maturing rapidly. I produced 5 mature follicles on a fraction of medication?” He then tells me “well we knew you’d be a poor responder because you have diminished ovarian reserve. Your AMH is .60” WHAT!!!!!!!
Um never once was it mentioned to me that I could be a poor responder to IVF until that moment.
I am no doctor, but here is what my bachelor’s in Googling tells me: If I have a low AMH and may be a poor responder I should not have been put on birth control which suppressed ovarian function for three weeks without a break.
He goes on to mention donor eggs and at that moment I tune out.
Side note: Shouldn’t this be a discussion that happens in person, not over the phone?
The second I got off the phone I called my RE in Los Angeles and promptly spoke to the nurses. Explained my protocol and the first thing she said was: “why are you on birth control? do you have cysts?” Exactly! I don’t have cysts.
Here are my dirty infertility details to date. I’d love to hear what everyone thinks. Am I really a candidate for donor eggs already? My gut tells me HELL NO.
January 2011 – pregnant naturally. Not trying
April 28th 2011 – early 20 week checkup reveals no heartbeat
May 2nd 2011 – Induced and deliver my son, Blake after 18 hours of labor. Labs on both me and my baby reveal nothing.
June 2011-May 2012 Take a TTC break for 1 year. Go on birth control to focus on healing the big gaping hole in my heart.
May 2012 – Begin trying
July 2012 – we are pregnant (naturally)
September 2012 – November 2012 – Blighted ovum at 9 weeks have a D&C. More bloodwork. Reveals I have a TSH level of 3.0. Dr says it’s normal but wants it at a 2.0. Puts me on Synthroid. We start interviewing fertility doctors. Find a fabulous doctor that we love in Santa Monica. Find out husband has abnormal morphology. Dr. recommends IUI.
November 2012- March 2013 – try naturally (no luck)
April 2013 – Begin IUI process Follistim protocol (5 matured follicles at trigger)
May 2013 – We are pregnant! (Ectopic) get the shots that cause the miscarriage
June-August 2013 – Move to Florida get a new (and shitty) RE based on recommendation
September 2013 – IVF #1 – Canceled due to poor response. Dr says I have low AMH .60 maybe I should move on to donor eggs. He will be fired tomorrow.
Given my history that 2 out of my 3 pregnancies have been natural. I am 32-years-old. My AMH is low from my age, but not dire I am sticking my my mantra “NEVER EVER GIVE UP”!